I’m a 15 year old female and have been very sick for about 2 years now. I have been through tons of blood, urine, and stool tests. 2 Endoscopy/colonoscopy, abdominal ct, abdominal x-ray, head ct, head mri, upper gi, and sweat test. I have also been psychologically cleared and it’s not a nerve problem.
Here are my symptoms ~
* severe abdominal and stomach pain (2 years off and on for 5 years)
* severe nausea (5 years)
* severe weight loss (now controlled by night time ng feeds)
* night fevers (1 year)
* bad headaches when I wake up (6 months)
* diarrhea 20 times a day (now constipated for almost a month since tube feeds started but comes back when off them. 2 years)
* severe rectal bleeding even in my pants (2 months)
* vision loss in right eye sometimes left too (2 months)
* fatigue (2 years)
* dizziness (this past week)
* joint pain (last 6 months)
* mouth ulcers (2 months)

I was diagnosed with crohn’s, then i wasn’t, then maybe, now probably not. I have already been tested for food allergies, celiac, parasites, infection, cystic fibrosis, ect…

My second GI doc once again diagnosed me with ibs and an eating disorder, which are both major misdiagnosis. He said that down the line he would do capsule endoscopy if it doesn’t improve. I’m just so tired of being sick!!! Am I just crazy and there is nothing wrong with me???

My parents have Kaiser insurance (we live in northern ca) but none of the doctors can help me. Is their any way to get financial assistance at a non-kaiser hospital?

Most of my dad’s relative’s have died (or dying) of cancer. My dad will only have one brother left. Colon cancer, pancriatic, and brain cancer are some of the types.

Any help is appreciated! Thank you!